Hello Everyone!!
I know a lot of the things I post here on my blog are all about fun and crafting!!
Today, is personal...I'd like to introduce you to a sweet and innocent little girl, who loves Jesus and her family with all her heart, who treasures every day, loves smiling, rainbows, dogs, butterflies and ladybugs...a lot like any other young girl...Only Macie has a very rare and hardly heard of, disorder called GLUT1. Shamefully, I take the fact that I have healthy children for granted...Do you?!?!
Please take a moment to meet Macie
Learn a little about Macie, her family and her Mission:
(click to read)
(click to read)
Sweet Macie is the daughter of my husband's cousin Glenna and her husband John Steele.
They are fighting hard, along side of Macie, for Macie and all the other children who have been diagnosed with GLUT1 and for those who are yet to be diagnosed.
They have march in Washington, the have attended Epilepsy Walks and even had the chance for Macie to represent more than 30,000 children in the US with epilepsy as the Epilepsy Foundation of Kentuckiana's Kids Speak Up! representative in Washington, D.C. The Article below is in the 2010 Issue 1 of of The Illuminator (a publication of the Epilepsy Foundation of Kentuckiana):
(click to read)
This summer, John and Glenna will be hosting the 2010 GLUT Conference in Louisville, Kentucky.
My 13 year old daughter, Hannah will be volunteering at the conference as there is plenty of need there when it comes to physical help. Hannah also wants to give financially and asked me if maybe I could design a Macie Digi. I did and here she is:
Macie's Rainbow
I will be selling this Sugar Stick Digi for Macie.
For a donation of $5 you can have her!!
100% of the proceeds will go to
Mission 4 Macie
If you would like to help Macie and all the children with Epilepsy and GLUT1
I thank each of you in advance for helping Macie!!
Please feel free to spread the news and post this post on your own blog, if you do so and purchase Macie's Rainbow Digi, Please leave a comment on this post letting me know you spread the word and bought the digi....I will then put your name into a drawing to win your own custom designed digi!!
and
16 comments:
What a wonderful thing to do Lori! Count me in! You have my email address.
Hugs!
Lisa
What a wonderful thing you and Hannah are doing!! Count me in!!
You girls are amazing!!! I'll have one too please!
YES!! I think this is wonderful! Count me in too.
Oh, girls you are so sweet and kind. Please send me one!!
Yes, what a wonderful cause! I'd like one too!
Lori, here is the link to my blog hope you enjoy the card.
http://buttonjunkie.blogspot.com/2010/06/mission-for-macie.html
Hi Lori,
I was very happy to donate and I copied your story over to my blog with a link back her to HELP spread the word!!
THANK YOU for doing such a sweet thing.
GOOD LUCK!!
Lisa
What a touching story, Lori. I will keep Macie and her family in prayer.
Hi Lori,
I love the work you are doing. You're an angel. May God continue to bless you and your family greatly.
What a great idea! God Bless you!
Vicki
I would love to do my bit too! I am off to email you now! What an inspiring story.TFS :)
Hey Lori!
I just finished my post and my cards. I'll be getting them in the mail on Saturday.
May God Bless Macie and the rest of her family. :O)
Hi Lori - I sent 2 emails to you to donate, but haven't heard back? Did they get kicked to your spam folder? My email is snappystamper[at]yahoo.com
Thanks a bunch!
Just wanted to let you know I used this image for the Dirty Dozen that will post on the 15th over on SCS.. Great image for a great cause. Thanks Lori.. I added your info about Macie to my post..
I would love this digi stamp. You are amazing! I emailed you my email address.
Thanks, Nicole
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